Neuro-Oncological Symptoms: A Longitudinal Quantitative Study of Family Function, Perceived Support, and Caregiver Burden
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Neuro-Oncological Symptoms : A Longitudinal Quantitative Study of Family Function, Perceived Support, and Caregiver Burden. / Piil, Karin; Laegaard Skovhus, Stine; Tolver, Anders; Jarden, Mary.
I: Journal of Family Nursing, Bind 28, Nr. 1, 2022, s. 43-56.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - Neuro-Oncological Symptoms
T2 - A Longitudinal Quantitative Study of Family Function, Perceived Support, and Caregiver Burden
AU - Piil, Karin
AU - Laegaard Skovhus, Stine
AU - Tolver, Anders
AU - Jarden, Mary
N1 - Publisher Copyright: © The Author(s) 2021.
PY - 2022
Y1 - 2022
N2 - The aim of this study was to establish preliminary quantitative evidence for the longitudinal change in family function, perceived support, and caregiver burden, acknowledging that physical and emotional symptoms are important variables for quality of life in families affected by a brain cancer diagnosis. This longitudinal quantitative study measured patient-reported and family member–reported outcomes at four different time points in 1 year. The patients reported that the symptom burden hindered their relationships with other people. Furthermore, the generally high level of strain due to the caregiver burden had an especially negative impact on close social relationships. Data indicate that family functioning was continually negatively affected as perceived by both patients and family caregivers. No significant changes over time were identified. The results underline the importance of providing systematic and ongoing support to the whole family that acknowledges their contribution as a valuable social support system for the individual experiencing high-grade glioma.
AB - The aim of this study was to establish preliminary quantitative evidence for the longitudinal change in family function, perceived support, and caregiver burden, acknowledging that physical and emotional symptoms are important variables for quality of life in families affected by a brain cancer diagnosis. This longitudinal quantitative study measured patient-reported and family member–reported outcomes at four different time points in 1 year. The patients reported that the symptom burden hindered their relationships with other people. Furthermore, the generally high level of strain due to the caregiver burden had an especially negative impact on close social relationships. Data indicate that family functioning was continually negatively affected as perceived by both patients and family caregivers. No significant changes over time were identified. The results underline the importance of providing systematic and ongoing support to the whole family that acknowledges their contribution as a valuable social support system for the individual experiencing high-grade glioma.
KW - family functioning
KW - high-grade glioma
KW - patient-reported outcomes
KW - social relationships
KW - symptoms
U2 - 10.1177/10748407211029986
DO - 10.1177/10748407211029986
M3 - Journal article
C2 - 34286624
AN - SCOPUS:85111131882
VL - 28
SP - 43
EP - 56
JO - Journal of Family Nursing
JF - Journal of Family Nursing
SN - 1074-8407
IS - 1
ER -
ID: 321546080